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August 21, 2018

Asbestos Disease Awareness Organization (ADAO) Praises Senate for Passing the Bipartisan 11th Annual "National …

WASHINGTON–(BUSINESS WIRE)–

The Asbestos Disease Awareness Organization (ADAO), which combines education, advocacy, and community to prevent exposure and ensure justice for asbestos victims, today praised the Senate for the passage of a resolution establishing the Eleventh Annual “National Asbestos Awareness Week.” This important educational week raises public awareness about the prevalence of asbestos-related diseases and the dangers of asbestos exposure and coincides with the international educational campaign – Global Asbestos Awareness Week. The Senate Resolution is led by Senator Edward J. Markey (D-MA) and cosponsors – Senators Cory Booker (D-NJ), Barbara Boxer (D-CA), Ben Cardin (D-MD), Mike Crapo (R-ID), Steve Daines (R-MT), Dick Durbin (D-IL), Dianne Feinstein (D-CA), Kirsten Gillibrand (D-NY), Johnny Isakson (R-GA), Patty Murray (D-WA), Harry Reid (D-NV), Chuck Schumer (D-NY), Jon Tester (D-MT), and Elizabeth Warren (D-MA).

Despite its known dangers, asbestos remains legal and lethal in the USA and imports continue. Exposure to asbestos can cause mesothelioma, lung, gastrointestinal, laryngeal, and ovarian cancers; as well as non-malignant lung and pleural disorders. The World Health Organization estimates that 107,000 workers around the world will die every year of an asbestos-related disease, equaling 300 deaths per day.

Linda Reinstein, President and Co-Founder of ADAO, expressed her gratitude commenting: “On behalf of ADAO, I would like to thank Senator Markey, Co-Sponsors, and full Senate for unanimously passing the 11th Annual ‘National Asbestos Awareness Week’ Resolution. We are extremely pleased to have such strong bipartisan backing of this critical resolution once again so that we can continue our concerted efforts to educate the public on the dangers of asbestos and build a legacy of hope for victims of asbestos each year.” She continued, “Most Americans can’t identify asbestos or manage the risk associated with repairs, renovation, construction, or disasters. The powerful 15 facts outlined in the resolution underscore the dangers of asbestos. Since 1900, the USA has consumed 31 million metric tons of asbestos, which has caused one of the largest man-made disasters. Each year, 10,000 Americans die from preventable asbestos-caused diseases. We are hopeful and encouraged by efforts to reform the outdated Toxic Substances Control Act (TSCA) from 1976 that has failed to ban asbestos and protect Americans from nearly 84,000 chemicals that have been grandfathered into commerce.”

“My decision to lead the sponsorship of this resolution was an easy one to make as I firmly believe that the key to ending asbestos related deaths is education and prevention and I applaud ADAO for its work to help further this important goal,” stated Senator Edward Markey. “The establishment of the Eleventh Annual Asbestos Awareness Week comes on the heels of my co-introduction, with Senator Barbara Boxer, of another important piece of legislation – the Alan Reinstein and Trevor Schaefer Toxic Chemical Protection Act, S. 725 – which seeks to protect children and communities from the dangers of toxic chemicals and specifically calls for a ban on asbestos. I remain enormously encouraged by the bipartisan efforts taking place to end exposures to toxic substances like asbestos.”

Senator Barbara Boxer said: “Asbestos is one of the most dangerous substances known to humankind – it takes 10,000 lives a year. National Asbestos Awareness Week is an important reminder of why we need to fight to ensure that our families and children are protected from this lethal hazard. That is why Senator Markey and I recently introduced S. 725, the Alan Reinstein and Trevor Schaefer Toxic Chemical Protection Act, which specifically addresses the threat posed by asbestos.”

ADAO has worked with members of the Senate since its founding in 2004 to unanimously pass annual asbestos awareness resolutions and has secured three U.S. Surgeon General asbestos statements in 20092013, and 2014 educating Americans about the dangers of asbestos and steps to prevent exposure. A copy of the resolution can be found here.

ADAO will hold its 11th Annual Asbestos Awareness Conference on April 17 – 19, 2015, at the Crystal Gateway Marriott in Arlington, VA. More than 40 renowned medical experts and asbestos victims from ten countries will speak on the latest advancements in asbestos disease prevention, treatment for mesothelioma and other asbestos-caused diseases, and global ban asbestos advocacy. To register for ADAO’s 2015 conference, click here.

About the Asbestos Disease Awareness Organization

The Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO is the largest non-profit in the U.S. dedicated to providing asbestos victims and concerned citizens with a united voice through our education, advocacy, and community initiatives. ADAO seeks to raise public awareness about the dangers of asbestos exposure, advocate for an asbestos ban, and protect asbestos victims’ civil rights. For more information, visit www.asbestosdiseaseawareness.org. ADAO, a registered 501(c)(3) nonprofit organization, does not make legal referrals.

Contact:

Asbestos Disease Awareness Organization (ADAO)

Kim Cecchini

Media Relations

202-391-5205


Kim@asbestosdiseaseawareness.org

This article: 

Asbestos Disease Awareness Organization (ADAO) Praises Senate for Passing the Bipartisan 11th Annual "National …

Asbestos Disease Awareness Organization (ADAO) Praises Senate for Passing the Bipartisan 11th Annual "National …

WASHINGTON–(BUSINESS WIRE)–

The Asbestos Disease Awareness Organization (ADAO), which combines education, advocacy, and community to prevent exposure and ensure justice for asbestos victims, today praised the Senate for the passage of a resolution establishing the Eleventh Annual “National Asbestos Awareness Week.” This important educational week raises public awareness about the prevalence of asbestos-related diseases and the dangers of asbestos exposure and coincides with the international educational campaign – Global Asbestos Awareness Week. The Senate Resolution is led by Senator Edward J. Markey (D-MA) and cosponsors – Senators Cory Booker (D-NJ), Barbara Boxer (D-CA), Ben Cardin (D-MD), Mike Crapo (R-ID), Steve Daines (R-MT), Dick Durbin (D-IL), Dianne Feinstein (D-CA), Kirsten Gillibrand (D-NY), Johnny Isakson (R-GA), Patty Murray (D-WA), Harry Reid (D-NV), Chuck Schumer (D-NY), Jon Tester (D-MT), and Elizabeth Warren (D-MA).

Despite its known dangers, asbestos remains legal and lethal in the USA and imports continue. Exposure to asbestos can cause mesothelioma, lung, gastrointestinal, laryngeal, and ovarian cancers; as well as non-malignant lung and pleural disorders. The World Health Organization estimates that 107,000 workers around the world will die every year of an asbestos-related disease, equaling 300 deaths per day.

Linda Reinstein, President and Co-Founder of ADAO, expressed her gratitude commenting: “On behalf of ADAO, I would like to thank Senator Markey, Co-Sponsors, and full Senate for unanimously passing the 11th Annual ‘National Asbestos Awareness Week’ Resolution. We are extremely pleased to have such strong bipartisan backing of this critical resolution once again so that we can continue our concerted efforts to educate the public on the dangers of asbestos and build a legacy of hope for victims of asbestos each year.” She continued, “Most Americans can’t identify asbestos or manage the risk associated with repairs, renovation, construction, or disasters. The powerful 15 facts outlined in the resolution underscore the dangers of asbestos. Since 1900, the USA has consumed 31 million metric tons of asbestos, which has caused one of the largest man-made disasters. Each year, 10,000 Americans die from preventable asbestos-caused diseases. We are hopeful and encouraged by efforts to reform the outdated Toxic Substances Control Act (TSCA) from 1976 that has failed to ban asbestos and protect Americans from nearly 84,000 chemicals that have been grandfathered into commerce.”

“My decision to lead the sponsorship of this resolution was an easy one to make as I firmly believe that the key to ending asbestos related deaths is education and prevention and I applaud ADAO for its work to help further this important goal,” stated Senator Edward Markey. “The establishment of the Eleventh Annual Asbestos Awareness Week comes on the heels of my co-introduction, with Senator Barbara Boxer, of another important piece of legislation – the Alan Reinstein and Trevor Schaefer Toxic Chemical Protection Act, S. 725 – which seeks to protect children and communities from the dangers of toxic chemicals and specifically calls for a ban on asbestos. I remain enormously encouraged by the bipartisan efforts taking place to end exposures to toxic substances like asbestos.”

Senator Barbara Boxer said: “Asbestos is one of the most dangerous substances known to humankind – it takes 10,000 lives a year. National Asbestos Awareness Week is an important reminder of why we need to fight to ensure that our families and children are protected from this lethal hazard. That is why Senator Markey and I recently introduced S. 725, the Alan Reinstein and Trevor Schaefer Toxic Chemical Protection Act, which specifically addresses the threat posed by asbestos.”

ADAO has worked with members of the Senate since its founding in 2004 to unanimously pass annual asbestos awareness resolutions and has secured three U.S. Surgeon General asbestos statements in 20092013, and 2014 educating Americans about the dangers of asbestos and steps to prevent exposure. A copy of the resolution can be found here.

ADAO will hold its 11th Annual Asbestos Awareness Conference on April 17 – 19, 2015, at the Crystal Gateway Marriott in Arlington, VA. More than 40 renowned medical experts and asbestos victims from ten countries will speak on the latest advancements in asbestos disease prevention, treatment for mesothelioma and other asbestos-caused diseases, and global ban asbestos advocacy. To register for ADAO’s 2015 conference, click here.

About the Asbestos Disease Awareness Organization

The Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO is the largest non-profit in the U.S. dedicated to providing asbestos victims and concerned citizens with a united voice through our education, advocacy, and community initiatives. ADAO seeks to raise public awareness about the dangers of asbestos exposure, advocate for an asbestos ban, and protect asbestos victims’ civil rights. For more information, visit www.asbestosdiseaseawareness.org. ADAO, a registered 501(c)(3) nonprofit organization, does not make legal referrals.

Contact:

Asbestos Disease Awareness Organization (ADAO)

Kim Cecchini

Media Relations

202-391-5205


Kim@asbestosdiseaseawareness.org

Original article:  

Asbestos Disease Awareness Organization (ADAO) Praises Senate for Passing the Bipartisan 11th Annual "National …

Asbestos Disease Awareness Organization (ADAO) Applauds Sens. Boxer and Markey for Introducing The Alan Reinstein and …

WASHINGTON–(BUSINESS WIRE)–

The Asbestos Disease Awareness Organization (ADAO), which combines education, advocacy, and community to help ensure justice for asbestos victims, today announced its support for the Alan Reinstein and Trevor Schaefer Toxic Chemical Protection Act, introduced by Senators Barbara Boxer (D-CA), Ranking Member of the Environment and Public Works Committee, and Edward Markey (D-MA), Ranking Member of the Subcommittee on Superfund, Waste Management, and Regulatory Oversight. The bill provides critical safeguards to protect children and communities from the dangers of toxic chemicals and specifically calls for a ban on asbestos.

The legislation, aimed specifically at reforming the 1976 Toxic Substances Control Act (TSCA), includes these key provisions:

  • Protects children and vulnerable populations from harmful toxins
  • Provides stronger safety standards and quicker safety reviews of chemicals
  • Ensures exposure from chemical spills and leaks are addressed
  • Requires the Environmental Protection Agency (EPA) to act quickly to consider a ban on asbestos
  • Maintains states’ rights to protect people from dangerous toxic chemicals

The bill is named in honor of two cancer victims – Alan Reinstein and Trevor Schaefer. Alan lost his battle to mesothelioma in 2006 at the age of 66 and was the beloved husband of ADAO President Linda Reinstein, who co-founded ADAO in 2004. Trevor Schaefer, a victim of toxic exposure, was diagnosed with brain cancer at the age of 13.

Ms. Reinstein stated: “ADAO applauds Senator Boxer and Senator Markey for their leadership in helping to take further steps to eliminate exposure to asbestos, a known carcinogen that has caused the most occupational deaths in history. This bill, named after my late husband Alan, represents not only his courageous battle with mesothelioma, which he lost nine years ago, but it also represents the hundreds of thousands of other asbestos victims – past, present, and future – along with Americans who’ve been affected by other toxic chemicals. Asbestos is still legal and lethal in the United States, and the Alan Reinstein and Trevor Schaefer Toxic Chemical Protection Act will enable the EPA to, once and for all, ban asbestos. ADAO has worked with a coalition of more than 450 organizations, who support real TSC reform. I am certain everyone will be supportive and grateful for its introduction and passage.”

Conversely, ADAO strongly opposes the legislation introduced earlier this week by U.S. Sens. David Vitter (R-LA) and Tom Udall (D-N.M.) inappropriately named the “The Frank R. Lautenberg Chemical Safety for the 21st Century Act”. The bill purportedly designed to protect the public from toxic substances would allow asbestos to remain legal and widely used in the U.S.

“The fact that the Vitter-Udall bill will not even restrict, much less ban, the deadly substance that claims 30 lives a day is nothing short of a national travesty,” said Reinstein. “Any Senator who supports this industry proposal is in essence supporting the continuation of the toll asbestos has already had on millions of American families. The bill, embraced by the chemical industry, will only expose future generations to asbestos and many other highly toxic chemicals.”

Despite its known dangers, the U.S. has failed to ban asbestos and imports continue. Each year, asbestos claims the lives of 10,000 Americans. Exposure to asbestos, a human carcinogen, can cause mesothelioma, lung, gastrointestinal, laryngeal, and ovarian cancers; as well as non-malignant lung and pleural disorders. The World Health Organization estimates that 107,000 workers around the world will die every year of an asbestos-related disease, equaling 300 deaths per day.

About the Asbestos Disease Awareness Organization

The Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO is the largest non-profit in the U.S. dedicated to providing asbestos victims and concerned citizens with a united voice through our education, advocacy, and community initiatives. ADAO seeks to raise public awareness about the dangers of asbestos exposure, advocate for an asbestos ban, and protect asbestos victims’ civil rights. For more information, visit www.asbestosdiseaseawareness.org.

Contact:

Asbestos Disease Awareness Organization (ADAO)

Kim Cecchini

Media Relations

202-391-5205


Kim@asbestosdiseaseawareness.org

Source: 

Asbestos Disease Awareness Organization (ADAO) Applauds Sens. Boxer and Markey for Introducing The Alan Reinstein and …

ADAO Announces Global Experts to Present at the 2015 Conference

LOS ANGELES–(BUSINESS WIRE)–

The Asbestos Disease Awareness Organization (ADAO), which combines education, advocacy, and community to help ensure justice for asbestos victims, today announced the speakers scheduled to present at the upcoming 11th Annual Asbestos Awareness Conference, “Where Knowledge and Action Unite” , April 17-19 2015 at the Crystal Gateway Marriot in Arlington, VA. ADAO also will be celebrating its 11th year of asbestos awareness success since the organization’s inception in 2004. ADAO is the only U.S. nonprofit that organizes annual conferences dedicated to preventing and eliminating asbestos-caused diseases.

Nearly 40 renowned experts and asbestos victims from ten countries will present the latest advancements in disease prevention, global advocacy, and treatment for mesothelioma and other asbestos-caused diseases. The April 18, 2015, conference includes four powerful, cutting–edge sessions:

  • Progress and Challenges from the Frontline
  • Medical Advancements: Diagnosing and Treating Mesothelioma and Other Asbestos-Related Diseases
  • Prevention: What Is It? Where Is It? What Do I Do?
  • Advocacy: Global Ban Asbestos Action

The conference underscores ADAO’s new “Hear Asbestos. Think Prevention.™” campaign, which is focused on continual global efforts aimed at preventing asbestos exposure to help end the tragedy of asbestos disease. ADAO began as a grassroots advocacy, spurred by Alan Reinstein’s mesothelioma diagnosis, beloved husband of the organization’s Co-Founder and President, Linda Reinstein.

“I look at where ADAO has come since I began this journey as the confused and angry wife of an innocent asbestos victim and it has made me realize even more how we are all connected by a strong thread of hope that weaves itself across continents and lives,” stated Ms. Reinstein. “As we celebrate the 11th year anniversary of ADAO and welcome our global supporters and speakers to this year’s conference, I’m reminded more than ever that there is strength in numbers.”

Collaborating with organizations around the world for a global asbestos ban since its inception in 2004, ADAO has become a leader in social media advocacy and community outreach for asbestos victims, their families, and loved ones to share support, resources, and provide hope. ADAO has shifted education and awareness activities into high gear – with an unparalleled effort to educate the public and medical community about asbestos-related diseases and preventing exposure. Responsible for three Surgeon General asbestos warnings and ten Senate Resolutions designating April as Asbestos Awareness Week each year, ADAO is recognized as one of the largest organizations fighting for justice on behalf of asbestos victims in the US and abroad.

The recently finalized conference list of speakers includes a highly esteemed group of research, advocacy, and medical experts from ten countries:

  • Arturo Aguilar, Filmmaker, Mexico
  • Syed Mezab Ahmed, World Asbestos Congress, Pakistan
  • Troi Atkinson, Mesothelioma Patient and 2015 Honoree, USA
  • Emily Bankhead, Mesothelioma Widow and 2014 Honoree, USA
  • Dr. Brad Black, Chief Executive Officer and Medical Director at Center for Asbestos Related Disease and ADAO Science Advisory Board, USA
  • Jill Cagle, Mesothelioma Widow and Singer, USA
  • Dr. Robert Cameron, University of California, Los Angeles and The West Los Angeles VA, USA
  • Barry Castleman, ScD, Author of the “Asbestos: Medical and Legal Aspects,” and ADAO Science Advisory Board, USA
  • Mark Catlin, Service Employees International Union, USA
  • Earl Dotter, Photojournalist, USA
  • Geoff Fary, Asbestos Safety and Eradication Agency, Chairman, Australia
  • Professor Dean Fennell, Chair of Thoracic Medical Oncology, University of Leicester and 2015 Honoree, United Kingdom
  • Dr. Raja Flores, Chairman, Department of Thoracic Surgery, Mount Sinai Health System and Asbestos Disease Awareness Organization Science Advisory Board, USA
  • Dr. Arthur Frank, Professor of Public Health and Chair Emeritus of the Department of Environmental and Occupational Health at the Drexel University School of Public Health and ADAO Science Advisory Board Co-Chair, USA
  • Fernanda Giannasi, Associação Brasileira dos Expostos ao Amianto (ABREA), Brazil
  • Marc Hindry, Association Nationale de Défense des Victimes de l’Amiante (ANDEVA), France
  • Dr. Philippe Gomes Jardim, The Brazilian Labor Public Ministry, Brazil
  • Doug Larkin, Asbestos Disease Awareness Organization, Co-Founder, USA
  • Richard Lemen, PhD, MSPH, Assistant Surgeon General, USPHS (ret.), Rear Admiral, USPHS (ret.) and ADAO Science Advisory Board Co-Chair, USA
  • Dr. Guadalupe Aguilar Madrid, Mexico
  • Dr. Luis Antonio Camargo De Melo, General Labour Prosecutor, Brazil
  • Captain Aubrey K. Miller, M.D., M.P.H., Senior Medical Advisor, Office of the Director, National Institute of Environmental Health Sciences, USA
  • Celeste Monforton, DrPH, MPH, Professorial Lecturer Dept of Environmental & Occupational Health Milken Institute School of Public Health George Washington University, USA
  • Patrick J. Morrison, Assistant to the General President for Occupational Health, Safety and Medicine, USA
  • Sandra Neuenschwander, Mesothelioma Mother, USA
  • Dr. Christine Oliver, Asbestos Disease Awareness Organization Science Advisory Board, USA
  • Ellen Patton, Mesothelioma Patient and 2015 Honoree, USA
  • Dr. Jorma Rantanen, Professor at International Commission on Occupational Health (ICOH) and 2015 Honoree, Finland
  • Linda Reinstein, Asbestos Disease Awareness Organization, President/CEO, USA
  • Barry Robson, Asbestos Diseases Foundation of Australia (ADFA), Australia
  • Domani Tripam, Mesothelioma Daughter, USA
  • Ellen Tunkelrott, Asbestos Disease Awareness Organization Board Member, USA
  • Sue Vento, Widow of the late Congressman Bruce Vento, USA
  • Cameron Von St James, Mesothelioma Husband, USA
  • Yvonne Waterman, Ph.D. LL.M., The Netherlands
  • Dr. John Wheeler, Associate Director for Science at CDC/ATSDR, USA
  • Lou Williams, Mesothelioma Patient and Asbestos Diseases Foundation of Australia (ADFA), Australia
  • Jordan Zevon, Asbestos Disease Awareness Organization Spokesperson and Musician, USA

Despite its known dangers, there is still no global ban on asbestos, and it continues to claim lives. Exposure to asbestos, a human carcinogen, can cause mesothelioma, lung, gastrointestinal, laryngeal, and ovarian cancers; as well as non-malignant lung and pleural disorders. The World Health Organization estimates that 107,000 workers around the world will die every year of an asbestos-related disease, equaling 300 deaths per day.

ADAO will hold its Eleventh Annual International Asbestos Awareness Conference on April 17 – 19, 2015, at the Crystal Gateway Marriott in Arlington, VA.

About the Asbestos Disease Awareness Organization

The Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO is the largest non-profit in the U.S. dedicated to providing asbestos victims and concerned citizens with a united voice through our education, advocacy, and community initiatives. ADAO seeks to raise public awareness about the dangers of asbestos exposure, advocate for an asbestos ban, and protect asbestos victims’ civil rights. For more information, visit www.asbestosdiseaseawareness.org.

Contact:

Asbestos Disease Awareness Organization (ADAO)

Kim Cecchini

Media Relations

202-391-5205


Kim@asbestosdiseaseawareness.org

See the original article here:  

ADAO Announces Global Experts to Present at the 2015 Conference

Asbestos Disease Awareness Organization (ADAO) Went to the Front Lines in 2014, with More than 40,000 People United in …

LOS ANGELES–(BUSINESS WIRE)–

The Asbestos Disease Awareness Organization (ADAO), the largest independent non-profit organization in the U.S. which combines education, advocacy, and community to help ensure justice for asbestos victims; today announced the highlights of its 2014 Year-In-Review.

With more than 40,000 people in its network, ADAO took its voice to the front lines to influence global policy, advocate for an asbestos ban, and promote research. The organization further strengthened its network of victims, physicians, researchers, public health practitioners, and labor union members and increased its credibility as a leader in the field with presentations at more than 12 conferences around the world.

“Every 2014 accomplishment is possible because of the generosity of volunteers, individual donors and, sponsors, who fuel our work and further our cause,” stated ADAO President Linda Reinstein. “We especially thank those who helped make our 10th Annual Conference in 2014 such a huge success and we are looking forward to setting new records of support for all of our programs next year, and in particular, our 2015 conference. The need has never been greater as we work together to influence a global ban, and join our minds and hearts to create a future where asbestos no longer claims lives.”

Top 5 Highlights:

2014 Education Initiatives: In an effort to educate the public about the dangers of asbestos exposure, ADAO:

2014 Advocacy Initiatives: In order to advocate for an international ban on asbestos use and the mining and exportation of this known carcinogen, ADAO:

  • Supported U.S. Senate’s passage of the Tenth Annual Resolution which designated April 1-7, 2014 as “National Asbestos Awareness Week”

2014 Community Initiatives: In an effort to provide a community of support for those affected by asbestos, ADAO:

Despite its known dangers, there is still no global ban on asbestos, and it continues to claim lives. Exposure to asbestos, a human carcinogen, can cause mesothelioma, lung, gastrointestinal, laryngeal, and ovarian cancers; as well as non-malignant lung and pleural disorders. The World Health Organization estimates that 107,000 workers around the world will die every year of an asbestos-related disease, equaling 300 deaths per day.

About the Asbestos Disease Awareness Organization

The Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO is the largest non-profit in the U.S. dedicated to providing asbestos victims and concerned citizens with a united voice through our education, advocacy, and community initiatives. ADAO seeks to raise public awareness about the dangers of asbestos exposure, advocate for an asbestos ban, and protect asbestos victims’ civil rights. For more information, visit www.asbestosdiseaseawareness.org.

Contact:

Asbestos Disease Awareness Organization (ADAO)

Kim Cecchini

Media Relations

(202) 391-5205


Kim@asbestosdiseaseawareness.org

Read article here: 

Asbestos Disease Awareness Organization (ADAO) Went to the Front Lines in 2014, with More than 40,000 People United in …

Asbestos payout scheme 'does not go far enough'

Campaigners for Hampshire victims of asbestos exposure have welcomed a controversial scheme that will land victims an average of £126,000 compensation but say the measures do not go far enough.

Payouts to people diagnosed with mesothelioma, or the families of those who have died, are on course to reach £32m in their first year.

The scheme was launched earlier this year, aimed at helping victims unable to trace the employer who exposed them to the deadly asbestos dust, but critics say it is the product of a “cynical deal” between insurers and the Government.

Figures in Hampshire, particularly Southampton, Eastleigh and Gosport, are well above the average number of deaths caused by the condition.

Lynne Squibb, co-founder of Hampshire Asbestos Support and Awareness Group, said the scheme would help victims but criticised its shortcomings.

She says one of the main problems is that only victims diagnosed after July 2012 will receive payouts, denying help to huge numbers of cases.

Lynne said: “We were incredibly disappointed that it only covers mesothelioma, and it doesn’t cover people whose husbands worked with asbestos or self-employed people either. It’s not perfect and we are undertaking to work with the Government to help ensure that the scheme improves.”

Mesothelioma is a cancer of the lining of internal organs, typically the lungs. It can take 40 years to develop after exposure – but then kills within nine months, on average.

Hampshire is a renowned black-spot, because asbestos was used in shipbuilding, construction and the automotive industry.

Southampton Itchen MP John Denham said: “I think it’s long overdue.

“I am pleased that it [the money] has been coming through and it has been a long struggle for money that could have helped to ease people at a very difficult time at the end of their lives.”

By October, after seven months of the scheme, 232 applications had been received and 131 payments made, totalling £16.5m.

Mark Harper, the minister for disabled people, said the total amount that insurers were expected to pay out in 2014-15 was £32m, based on the first payments.

He said: “I am proud of what Government and stakeholders have achieved in delivering the Diffuse Mesothelioma Payment Scheme.”

Nearly 2,400 people, mostly men, die from mesothelioma every year.

View article:

Asbestos payout scheme 'does not go far enough'

Asbestos Disease Awareness Organization (ADAO) Honored to Present at 12th International Mesothelioma Interest Group …

LOS ANGELES–(BUSINESS WIRE)–

The Asbestos Disease Awareness Organization (ADAO), the largest independent non-profit organization in the U.S. which combines education, advocacy, and community to help ensure justice for asbestos victims; is honored to be chosen to present at the 2014 International Mesothelioma Interest Group (iMig) Conference Oct. 21-24 in Cape Town, South Africa. At the event, ADAO President, Linda Reinstein, will discuss the importance of supportive resources for mesothelioma patients and their families. As a conference exhibitor, ADAO will also highlight the important role social advocacy plays in uniting mesothelioma patients and their families, and serving as an international forum to help prevent exposure and efforts to fund a cure.

Ms. Reinstein will share results of the ADAO survey on “Supportive Resources in the Mesothelioma Community” at the 2014 iMig Conference, hosted by the South African Mesothelioma Interest Group (SAMIG), and held at the Cape Town International Conference Centre (CTICC), featuring experts from across the globe dedicated to improving treatment and research. Considered as a world’s premier medical congress on mesothelioma, iMig’s theme this year is “the ongoing quest for cure.”

Ms. Reinstein will share important facts from the survey that underscore the need for patient focused resources. The online qualitative survey was administered to mesothelioma patients and caregivers through Facebook, Twitter, ADAO eNewsletters, and direct emails. Unfortunately, as Ms. Reinstein will explain, the majority (84%) were not given educational resources from their medical team nor advised to join a support group (92%) upon diagnosis. The majority found online mesothelioma resources improved their lives greatly (60%) or slightly (32%). The important results of the survey underscore that patients and their families rely on online supportive resources to obtain medical information, share personal experiences, build peer-to-peer networks, and improve quality of life.

“Patients want educational resources at the time of diagnosis, but only 16% received such referrals, leaving thousands without this crucial element of palliative care,” stated Ms. Reinstein. “The survey addresses responses to psychosocial burdens faced by mesothelioma patents and caregivers including a steep learning curve, anticipatory grief, social isolation, and ability to endure daily struggles. I look forward to the opportunity to share this critical information with iMig’s conference’s global base.”

ADAO will also share key information about the power of social media through materials that highlight: “Social Advocacy: Where Knowledge and Community Unite.” When her husband was diagnosed with mesothelioma 10 years ago, Ms. Reinstein recognized the need for increased medical resources, greater access to support, and legislative advocacy. ADAO’s social advocacy programs have built a global community spanning nearly 20 countries and more than 40,000 people, earning a ranking of #2 in a Twitter study of 500 health and safety organizations.

“ADAO’s digital storytelling and social advocacy efforts have led to three statements on the dangers of asbestos from Acting U.S. Surgeons General, Senate Resolutions, and Global Asbestos Awareness Week,” explained Ms. Reinstein. “ADAO’s results confirm the positive benefits of social advocacy to support patients and families, influence lawmakers, shape policy, and increase funding for research.”

Despite its known dangers, there is still no global ban on asbestos, and it continues to claim lives. Exposure to asbestos, a human carcinogen, can cause mesothelioma, lung, gastrointestinal, laryngeal, and ovarian cancers; as well as non-malignant lung and pleural disorders. The World Health Organization estimates that 107,000 workers around the world will die every year of an asbestos-related disease, equaling 300 deaths per day.

About the Asbestos Disease Awareness Organization

The Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO is the largest non-profit in the U.S. dedicated to providing asbestos victims and concerned citizens with a united voice through our education, advocacy, and community initiatives. ADAO seeks to raise public awareness about the dangers of asbestos exposure, advocate for an asbestos ban, and protect asbestos victims’ civil rights. For more information, visit www.asbestosdiseaseawareness.org.

Contact:

Asbestos Disease Awareness Organization (ADAO)

Kim Cecchini, Media Relations

202-391-5205


Kim@asbestosdiseaseawareness.org

Link: 

Asbestos Disease Awareness Organization (ADAO) Honored to Present at 12th International Mesothelioma Interest Group …

ADAO Hosts “Jammin’ for Asbestos Awareness” Concert with the Bob Rahe Family, Featuring Renowned National and Local …

LOS ANGELES–(BUSINESS WIRE)–

The Asbestos Disease Awareness Organization (ADAO), the largest independent non-profit organization in the U.S. which combines education, advocacy, and community to help ensure justice for asbestos victims; today announced the “Jammin’ for Asbestos Awareness” Concert September 26 in Omaha, Nebraska. Hosted in conjunction with the Bob Rahe Family, the event features top national and local performers who are joining together to celebrate the life of asbestos victims.

The concert, which coincides with National Mesothelioma Awareness Day, was inspired by the memory of Bob Rahe, who lost his battle to mesothelioma. ADAO is sponsoring the concert to further its efforts as the leader in building asbestos awareness communities in the fight against asbestos.

“As the only organization dedicated to combining education, advocacy, and community through a truly global, volunteer-driven effort, ADAO is excited to support the Jammin’ for Asbestos Awareness Concert as another great example of how we can all come together to fight deadly asbestos diseases,” stated ADAO Co-Founder and President Linda Reinstein. “We owe our sincere thanks to our volunteers, interns, supporters, donors, patients and their families, LeadershipScience Advisory Board, and our National Spokesperson Jordan Zevon, who will be featured at the event. Our network includes over 20,000 individuals eager to live in a world without asbestos; we expresses our sincere gratitude to the Bob Rahe Family for being a part of this network, and organizing this event in memory of Bob.”

“The Bob Rahe Family supports the efforts of ADAO in all respects,” stated the family spokesperson for the event. “Bob Rahe was a father, brother, and uncle who came into contact with asbestos during a summer job. We had no idea that over 30 years later, he would be diagnosed with a deadly cancer relating to this exposure. Many people are unaware that the U.S. continues to import asbestos into our country, and that we are still utilizing products that contain this poisonous hazard. We are organizing this event to promote education and awareness. Maybe, one day, with all of us armed with much more knowledge than we had yesterday, we can look towards a cure.”

The concert will take place at 7 pm on September 26 at the Slowdown, located at 729 North 14th Street in Omaha; doors open at 6 pm. Interested parties can purchase tickets online or at the door for $20 each. The first 50 ticket holders to enter the Slowdown will receive a free event t-shirt.

PERFORMERS:

Local Bands:
The Jiggawatts, CleverLumpy GravyMandown, and Cosmic Radio

National Singers/Musicians:
Jordan Zevon, ADAO National Spokesperson
Troi Atkinson, Mesothelioma Patient

Despite its known dangers, there is still no global ban on asbestos, and it continues to claim lives. Exposure to asbestos, a human carcinogen, can cause mesothelioma, lung, gastrointestinal, laryngeal, and ovarian cancers; as well as non-malignant lung and pleural disorders. The World Health Organization estimates that 107,000 workers around the world will die every year of an asbestos-related disease, equaling 300 deaths per day.

About the Asbestos Disease Awareness Organization

The Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO is the largest non-profit in the U.S. dedicated to providing asbestos victims and concerned citizens with a united voice through our education, advocacy, and community initiatives. ADAO seeks to raise public awareness about the dangers of asbestos exposure, advocate for an asbestos ban, and protect asbestos victims’ civil rights. For more information, visit www.asbestosdiseaseawareness.org.

Contact:

Asbestos Disease Awareness Organization (ADAO)

Kim Cecchini, 202-391-5205

Media Relations


Kim@asbestosdiseaseawareness.org

Link to original: 

ADAO Hosts “Jammin’ for Asbestos Awareness” Concert with the Bob Rahe Family, Featuring Renowned National and Local …

The Asbestos Disease Awareness Organization, in Conjunction with the Bob Rahe Family, Organizes the “Jammin’ for …

WASHINGTON–(BUSINESS WIRE)–

The Asbestos Disease Awareness Organization (ADAO), the largest
independent non-profit asbestos victims’ organization in the U.S. which
combines education, advocacy, and community support, joins forces with
the Bob Rahe Family to host the “Jammin’ for Asbestos Awareness,”
concert on September 26, 2014 in Omaha, Nebraska.

WHO: The Rahe Family in loving memory of Bob Rahe
who lost his battle with mesothelioma

 

WHAT:  “Jammin’ for Asbestos Awareness” Event – An
All-Ages Concert  

 

WHEN:  Friday, September 26, 2014, National Mesothelioma
Awareness Day

Doors open at 6 pm; Event begins at 7 pm

 

WHERE: The Slowdown at 729 North 14th Street in
Omaha, Nebraska

 

WHY: Raise asbestos awareness and funds to prevent exposure
to eliminate asbestos-caused diseases

 

HOW: Purchase
tickets online
or at the door. http://theslowdown.com/event.cfm?id=161647

The first 50 ticket holders to enter The Slowdown will receive a
free event t-shirt!

Price: $20

Questions or Inquiries: Email jam@asbestosdiseaseawareness.org
or visit The
Slowdown website
for information about the bands.

PERFORMERS:

Local Bands:

The
Jiggawatts
, CleverLumpy
Gravy
Mandown,
and Cosmic
Radio

 

National Singers/Musicians:

Jordan
Zevon
, ADAO National Spokesperson

Troi
Atkinson
, Mesothelioma Patient

 

“The Bob Rahe Family supports the efforts of ADAO in all respects,”
stated the family spokesperson for the event. “Bob Rahe was a father,
brother, and uncle who came into contact with asbestos during a summer
job. We had no idea that over 30 years later, he would be diagnosed with
a deadly cancer relating to this exposure. Many people are unaware that
the U.S. continues to import asbestos into our country, and that we are
still utilizing products that contain this poisonous hazard. We are
organizing this event to promote education and awareness. Maybe, one
day, with all of us armed with much more knowledge than we had
yesterday, we can look towards a cure.”

“ADAO expresses our sincere gratitude to the Bob Rahe Family for
organizing this event in memory of Bob,”
said Linda Reinstein, ADAO President and Co-Founder. “It is
reprehensible that asbestos is still legal and lethal in the USA and
claims the lives of 30 Americans each day. While promising mesothelioma
research continues, prevention remains the only cure.”

About the Asbestos Disease Awareness Organization

The Asbestos Disease Awareness Organization (ADAO) was founded by
asbestos victims and their families in 2004. ADAO is the largest
non-profit in the U.S. dedicated to providing asbestos victims and
concerned citizens with a united voice through our education, advocacy,
and community initiatives. ADAO seeks to raise public awareness about
the dangers of asbestos exposure, advocate for an asbestos ban, and
protect asbestos victims’ civil rights. For more information, visit www.asbestosdiseaseawareness.org.

Contact:
Media:

Asbestos Disease Awareness Organization (ADAO)

Kim Cecchini, 202-391-5205

Media Relations


Kim@asbestosdiseaseawareness.org

or

Lisa Rahe Thompson, 402-206-6444

Family and Event Representative


Lisa_m_Thompson@msn.com

More here:  

The Asbestos Disease Awareness Organization, in Conjunction with the Bob Rahe Family, Organizes the “Jammin’ for …

Acting U.S. Surgeon General Issues Statement on the Dangers of Asbestos in Support of National Asbestos Awareness Week

WASHINGTON–(BUSINESS WIRE)–

The Asbestos Disease Awareness Organization (ADAO) applauds the statement today from Rear Admiral Boris Lushniak, Acting U.S. Surgeon General that “There is no known safe level of asbestos exposure and precautions should be taken to protect your health.” As his statement explained, “Scientists have long understood that asbestos can cause mesothelioma, lung cancer, and other lung diseases when the fibers are inhaled…Apparent symptoms and disease may take many years to develop following exposure, and asbestos-related conditions can be difficult to identify.”

ADAO is honored that Dr. Lushniak will be the keynote speaker at our 10th Annual Asbestos Disease Awareness Conference, “Where Knowledge and Action Unite,” April 5, 2014 in Washington, D.C.

Since 2004, ADAO has been working with Congress and the White House to prevent asbestos exposure in efforts to eliminate deadly asbestos-related diseases. The 10th annual Senate Resolution 336, designating April 1 – 7 as National Asbestos Awareness Week includes a chilling list of facts about the dangers of asbestos. “Asbestos is deadly. It does not think; it just kills. This so-called miracle mineral gets into your body and doesn’t show itself for years,” said Michael Bradley, a 29-year-old mesothelioma patient. Bradley is a presenter at the ADAO Conference, on the topic “Asbestos Ruined My Life.” Each day of the 2014 Asbestos Awareness Week educational campaign features the Acting U.S. Surgeon General’s statement, guest blogs from experts and patient stories like Bradley’s, shared through social media networks.

“More than 10,000 Americans die every year from preventable diseases, yet exposure continues,” stated Linda Reinstein, ADAO Co-Founder and President. “The time is now for Congress to begin the steps to reduce and eventually stop asbestos imports and ban asbestos. Fifty-five countries have banned asbestos, but the U.S. is not one of them. Millions of tons of asbestos remain in U.S. homes, schools, offices, and factories. The U.S. Geological Survey (USGS) reported that in 2013, U.S. asbestos consumption was 950 tons in order to meet ‘manufacturing needs.’ There is consensus from the U.S. Environmental Protection Agency, National Institute for Occupational Safety and Health, World Health Organization, International Labor Organization, and International Agency for Research on Cancer that asbestos is a carcinogen and there is no safe level of exposure to asbestos.”

To read the Acting Surgeon General’s full statement, visit: http://www.hhs.gov/news/press/2014pres/04/20140402a.html.

About the Asbestos Disease Awareness Organization

The Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO seeks to give asbestos victims a united voice to help ensure that their rights are fairly represented and protected, and raise public awareness about the dangers of asbestos exposure and the often deadly asbestos-related diseases. ADAO is funded through voluntary contributions and staffed by volunteers. For more information, visit www.asbestosdiseaseawareness.org.

Contact:

ADAO

Kim Cecchini, 202-391-5205


kim@asbestosdiseaseawareness.org

See the original article here: 

Acting U.S. Surgeon General Issues Statement on the Dangers of Asbestos in Support of National Asbestos Awareness Week